Did you know that the government is already buying health data from your GP? My Health Record (formerly known as the PCEHR) has been working since July 2012. Initially it was hardly used, which raises the question – if it’s so good why was it not promoted and used by GPs? Rather than address the… Read More
JOINT MEDIA RELEASE BY ELECTRONIC FRONTIERS AUSTRALIA, FUTURE WISE, AND THE AUSTRALIAN PRIVACY FOUNDATIONEFA, Future Wise and APF today denounced the actions of HealthEngine and its doctor appointment booking system which has been sharing patient data with law firms, marketers, and other entities with the flimsiest pretense of patient consent. “If this ethically dubious behaviour… Read More
Has Canberra learned the wrong lesson from Cambridge Analytica: abusing ‘informed consent’ gives you a plausible excuse? Exploiting ignorance, inaction and misplaced trust gets you the Big Data?
Our advice on My Health Record, like that of Dr Katherine Kemp, a specialist in data privacy , is to Opt-Out while you still can: we now know that your once-off chance to protect your medical confidentiality begins on 16 July and expires on 15 October 2018. Read More
There can be benefits from the ‘sharing’ (distribution) of health and other personal information among health care professionals and researchers. Any such ‘sharing’ must, however, be based on an understanding of potential risks. It must only occur within an effective legal framework, and controls appropriate for those risks. A ‘Trust me, I’m from the government!’… Read More
It is reported recently  that the Federal government will be registering everyone who doesn’t already have one for a My Health Record but has no intention of proactively informing Australians of this gross invasion of their privacy. My Health Record is designed to store data on government servers about your medical treatment. As Mr… Read More
Centrelink has recently delegated decision-making about people’s entitlements to a computer.
And, surprise, surprise, neither the data nor the software are good enough to support the process.
As a result, thousands of people have received demands for copies of old documents, and have been wrongly subjected to ham-fisted actions by commercial debt-collectors. Read More