Defending your right to control your personal information

Campaigns

My Health Record

This is the latest brand name for the Australian government-controlled online copy of parts of your health information. From 2012 until 2015 it was called the ‘Personally-Controlled Electronic Health Record’ (PCEHR). It is not designed for patients, and it is not designed for health care professionals. And it’s being foisted on you.

The 2016 Census

APF led the fight against the retention of identifiers with Census data. The ABS conducted an internal assessment, avoided engaging with the public, ignored the evidence provided to it, implemented a system with abysmal security precautions, crashed on Census night – yet no-one was sacked.

Australia Card (again)

The descendants of the public servants who tried to impose the Australia Card scheme in 1987 keep trying to achieve the same result. The Access Card, the mygov Portal, and national document and photograph ‘verification’ services are just some of the attempts that the APF has worked to defeat.

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News

APF joins a coalition of human rights groups and experts in calling on the Australian government to protect encryption

Today, the Australian Privacy Foundation joins with Electronic Frontiers Australia, Digital Rights Watch, Future Wise, and other domestic and international human rights organisations in asking the Australian government to not pursue legislation undermining encryption, and other tools, policies and technologies critical to protecting individual rights. The 76 organisations, companies, and individuals signatory to this open letter call on government officials to become proponents of digital security and work collaboratively to help law enforcement adapt to the digital era.

This letter was been initiated by global digital rights organisation Access Now. “Australia is facing a choice on cybersecurity and encryption: real security or false,” said Nathan White, Senior Legislative Manager at Access Now. “The country can either be the testing ground for policies that undermine privacy and security in the digital era, or it can be a champion for human rights, leveraging its relationships to raise cybersecurity standards for the next generation. The world is watching.”

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Katharine Kemp, UNSW; Bruce Baer Arnold, University of Canberra, and David Vaile, UNSW Unless you take action to remove yourself from the My Health Record (MHR) system, the federal government will make a digital copy of your medical record, store it centrally, and, as the default, provide numerous people with access to it. If you… Read More

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Did you know that the government is already buying health data from your GP? My Health Record (formerly known as the PCEHR) has been working since July 2012. Initially it was hardly used, which raises the question – if it’s so good why was it not promoted and used by GPs? Rather than address the… Read More

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JOINT MEDIA RELEASE BY ELECTRONIC FRONTIERS AUSTRALIA, FUTURE WISE, AND THE AUSTRALIAN PRIVACY FOUNDATIONEFA, Future Wise and APF today denounced the actions of HealthEngine and its doctor appointment booking system which has been sharing patient data with law firms, marketers, and other entities with the flimsiest pretense of patient consent. “If this ethically dubious behaviour… Read More

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Has Canberra learned the wrong lesson from Cambridge Analytica: abusing ‘informed consent’ gives you a plausible excuse? Exploiting ignorance, inaction and misplaced trust gets you the Big Data?
Our advice on My Health Record, like that of Dr Katherine Kemp, a specialist in data privacy [1], is to Opt-Out while you still can: we now know that your once-off chance to protect your medical confidentiality begins on 16 July and expires on 15 October 2018.

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MEDIA RELEASE: Australian Privacy Foundation “seriously alarmed” about recent revelations that would allow Australian Signals Directorate to spy on Australians with even less accountability

The Australian Privacy Foundation is seriously alarmed about a recently revealed legislative proposal that would have Australia’s foreign signals intelligence agency, the Australian Signals Directorate (ASD), use its considerable powers to surveil, track, and hack Australian citizens without prior authorisation. This is a dangerous precedent that would remove an already inadequate oversight mechanism that our… Read More

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